Acronyms Used in the Carcinoid and Neuroendocrine Tumor Community

Novartist Oncology website – Journalist Handbook Special Focus on Neuroendocrine Tumors (NET) (pdf)

2013 North American Neuroendocrine Tumor Society (NANETS) Consensus Guidelines for the Diagnosis of Neuroendocrine Tumor


The Carcinoid Cancer Foundation

Neuroendocrine Tumor Research Foundation

The Healing Net Foundation

Northern California CarciNET Community

Los Angeles Carcinoid Neuroendocrine Tumor Society (LACNETS)
Patient Education Seminar Videos

Roswell Park Cancer Institute – Neuroendocrine and Carcinoid Tumors

Novartis Oncology – Neuroendocrine Tumors
– Page include Results from the First Global NET Survey videos:
— Part 1: Time to Diagnosis
— Part 2: The NET Patient Experience
— Part 3: Multidisciplinary Care in NET

Neuroendocrine Cancer Awareness Network (NCAN) and NCAN NET Care Professional Education

Website by Susan Anderson – An advocate for Carcinoid and Neuroendocrine Tumor Awareness

Medscape pages – Carcinoid Tumor and Malignant Carcinoid Syndrome

Northwoods NETS (Minnesota)

A site for patients considering PRRT (Peptide Receptor Radionuclide Therapy) treatment

Lung NETs and Their Treatment

WebMD page – Carcinoid Tumors – Carcinoid Tumor Guide

Mayo Clinic page – Carcinoid tumors

European Neuroendocrine Tumor Society – Current Guidelines

Merck Manual – Carcinoid Tumors and Carcinoid Syndrome
Consumer Version
Professional Version

OncoLink.ogr page – All About Carcinoid and Neuroendocrine Tumors

The North American Neuroendocrine Tumor Society (NANETS)
– Video: Clinical Diagnosis of NETS: “If You Don’t Suspect It; You Can’t Detect It”
– Video: Neuroendocrine Tumors Clinical Trials: Questions and Answers – Carcinoid Syndrome (Carcinoid Tumor)